The Endolorosa Club
A club nobody asked to join.
She spreads.She morphs.She has a mind of her own.
A growing collection of short Endolorosa stories, animations, printable sheets, and survival notes about the strange, frustrating, sometimes absurd reality of living with endometriosis.
This initially started as material for a sarcastic tiny manual on navigating endometriosis. Maybe one day these pieces will become the tiny guide/book.
Hi, it's me, Endolorosa.
Endolorosa is a personified rogue endometriosis cell: part mascot, part troublemaker, part instigator of the absurd things humans with endometriosis have to endure. She cannot be bothered to politely explain endo or help you navigate life with it. She simply accompanies you through the misunderstandings, bad advice, medical detours, coping strategies, and tiny moments of relief that come with living with endo.
Endolorosa (proper noun; coined)
A playful hybrid term combining endo-, from Ancient Greek ἔνδον / endon meaning within or inside, and Latin dolor, meaning pain or grief, with the Romance feminine ending -osa. The name evokes the pain within: a poetic descriptor for internal, often unseen pain, especially in the context of endometriosis.
Sometimes you can see her traces, but very often you have to keep guessing.
Endometriosis can be extensive, infuriating and deeply disruptive while remaining completely invisible from the outside. And perhaps that is the strange thing about endometriosis: every case grows differently, affects different places, and leaves a different imprint on the person living with it. There is no single face of endo.
With that thought in mind, I created a tiny, 1-minute whimsical animation of Endolorosa which premiered in September 2026 at the first Austrian Endometriosis Film Festival in four cities.
What it's really like to live with endometriosis
Endolorosa likes to spread out - but mostly on the surface. If you're after the deeper facts, this is where to start: