Useful Links
Curated resources on endometriosis
European Endometriosis League
The European Endometriosis League (EEL) raises public awareness and supports scientific research. They focus on education and training in diagnosis and therapy, organizing MasterClasses and trainee programs for resident physicians.
Endometriose.app
Comprehensive endometriosis knowledge database with extensive information about the condition (German language).
Endometriosis.org
Global platform connecting all stakeholders in endometriosis - one of the most common causes of pelvic pain and infertility.
nicht die regel - Documentary
First German-language feature documentary about endometriosis. Regular Europe-wide screenings and discussion panels. Dora from Endopaedia is part of the core team.
Osada Method
Information website by Dr. Osada, developer of the Osada Method - a uterus-preserving surgical technique for adenomyosis (endometriosis of the uterine muscle).
EPHect
The Endometriosis Phenome and Biobanking Harmonisation Project developed standardized methods for collecting clinical data, surgical data, and biospecimens. This international initiative enables researchers worldwide to compare and collaborate on endometriosis research using consistent data collection protocols.
Global Library of Women's Medicine (GLOWM)
Free online resource with expert chapters, textbooks, and clinical videos on women's health. Continuously updated, evidence-based guidance for OB/GYN and reproductive health professionals worldwide. Run as non-profit with scientific oversight.
Pelvic Pain & Endometriosis
Originally designed to provide information about the symptom of painful sex, this site has since expanded to include more general information about pelvic pain and endometriosis. It provides evidence-based information on painful sex, treatment options (hormonal, surgical), physiotherapy, and more. Funded by the Canadian Institute of Health Research.
Books on Endometriosis
"A club nobody asked to join."
The Endolorosa Club
Stories, animations, printable sheets, and survival notes about endometriosis reality.
This initially started as material for a sarcastic tiny manual on navigating endometriosis. Maybe one day these pieces will become the tiny guide/book.
Follow along: @endo.paedia
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Recommended Reading
Eyes of the Gorgon: Endometriosis, Mythic Embodiment, and Freedom
Eyes of the Gorgon: Endometriosis, Mythic Embodiment, and Freedom
Jaffa Frank weaves Medusa, Athene, and endometriosis into a mythopoetic narrative of healing and empowerment. By rendering pathology sacred, she offers a mythos of meaning and freedom beyond the medical model.
Endometriosis: Understand your symptoms, get the right treatment, reclaim your life
Endometriosis: Understand your symptoms, get the right treatment, reclaim your life
Comprehensive guide by Jen Moore, created from 22 years lived experience. Packed with expert insights, community experiences, and clinician perspectives to help navigate diagnosis and treatment. Essential reading for patients and healthcare professionals.
Heal Endo: An Anti-Inflammatory Approach to Healing from Endometriosis
Heal Endo: An Anti-Inflammatory Approach to Healing from Endometriosis
Katie Edmonds' integrative handbook based on hundreds of published scientific studies. Explains how diet, lifestyle, and treatment choices can help put you back in control by addressing endometriosis as an inflammatory disease.
Finding Peace with a Devastating Disease: Reflections on Endometriosis
Finding Peace with a Devastating Disease: Reflections on Endometriosis
Amy Corfeli's collection of 76 personal reflections exploring the emotional journey of living with endometriosis. Each reflection includes guided journaling prompts for self-compassion and healing.